Get Involved
We’re dedicated to finding a cure, but we can’t do it alone
From the day we were founded in 1989, the Oxalosis & Hyperoxaluria Foundation (OHF) has been dedicated to raising awareness about these conditions and advocating on behalf of people with hyperoxaluria and their families. OHF brings together a vibrant, motivated hyperoxaluria community that works together to fund clinical research, host events, and educate patients and healthcare providers.
If you are new to the hyperoxaluria community, we encourage you to contact us. We can help connect you with others in the community, assist you with enrolling in clinical trials, and more.
There are so many ways to help
There are many ways you can spread the word about hyperoxaluria and support the vital clinical research that is changing lives every day.
Volunteer
OHF is fueled by the passion and hard work of volunteers worldwide. When you give your time and talents, you help us create brighter tomorrows for people with hyperoxaluria and their families.
Ready to volunteer? Contact us at info@ohf.org.
Contact Your Representatives
Now more than ever, it is critical for people with hyperoxaluria and their families, friends, and colleagues to advocate for a cure. Share your voice and tell your elected officials how they can help fight hyperoxaluria.
Contact your member of Congress:
Find current and past legislation at congress.gov.
Patient Voice Panel
The Patient Voice Panel comprises patients, parents, family members, and caregivers, and is facilitated by members of the OHF staff. The role of the Patient Voice Panel is to support OHF’s mission by providing valuable input to OHF and industry partners to expand research, education, programs, and advocacy. The group helps OHF better understand the needs of patients and families while improving the culture within the hyperoxaluria community. The Patient Voice Panel works directly with OHF staff expanding outreach while raising awareness in local communities. If you would like to join the Patient Voice Panel, please contact Julie Bertarelli at julieb@ohf.org.
Patient Voice Panel
The Patient Voice Panel comprises patients, parents, family members, and caregivers, and is facilitated by members of the OHF staff. The role of the Patient Voice Panel is to support OHF’s mission by providing valuable input to OHF and industry partners to expand research, education, programs, and advocacy. The group helps OHF better understand the needs of patients and families while improving the culture within the hyperoxaluria community. The Patient Voice Panel works directly with OHF staff expanding outreach while raising awareness in local communities. If you would like to join the Patient Voice Panel, please contact Julie Bertarelli at julieb@ohf.org.
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