Patient Voice Panel
The Patient Voice Panel comprises patients, parents, family members, and caregivers, and is facilitated by members of the OHF staff. The role of the Patient Voice Panel is to support OHF’s mission by providing valuable input to OHF and industry partners to expand research, education, programs, and advocacy. The group helps OHF better understand the needs of patients and families while improving the culture within the hyperoxaluria community. The Patient Voice Panel works directly with OHF staff expanding outreach while raising awareness in local communities. If you would like to join the Patient Voice Panel, please contact Julie Bertarelli at firstname.lastname@example.org.