In September, while attending the Annual 2019 Global Genes Patient Advocacy Summit in San Diego, our RARE Revolution team had the privilege of hosting a roundtable in partnership with Dicerna Pharmaceuticals and the Oxalosis and Hyperoxaluria Foundation (OHF). Rebecca, CEO of RARE Revolution recounts their individual stories and collective experiences. (Page 54-Page 58)
News & Events
The Oxalosis & Hyperoxaluria Foundation is dedicated to the awareness, understanding, and treatment of primary hyperoxaluria, oxalosis, and related hyperoxaluria kidney stone conditions. Our news and events page is designed to help you stay up to date on the latest research breakthroughs, important events, and personal stories that affect the oxalosis and hyperoxaluria community.