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Get Involved

We need your help.

We’re dedicated to finding a cure, but we can’t do it alone 

From the day we were founded in 1989, the Oxalosis & Hyperoxaluria Foundation (OHF) has been dedicated to raising awareness about these conditions and advocating on behalf of people with hyperoxaluria and their families. OHF brings together a vibrant, motivated hyperoxaluria community that works together to fund clinical research, host events, and educate patients and healthcare providers.

If you are new to the hyperoxaluria community, we encourage you to contact us. We can help connect you with others in the community, assist you with enrolling in clinical trials, and more.

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There are so many ways to help

There are many ways you can spread the word about hyperoxaluria and support the vital clinical research that is changing lives every day.

 

donate

Donate

Did you know that 90% of every dollar donated to OHF is used to fund clinical research? We are passionate about funding the research that will one day deliver a cure, and we want the world to know how important that cure is for the thousands of people affected by the disease.

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fundraise

Fundraise

Our fundraisers help secure financial support for research, they raise awareness about hyperoxaluria… and they strengthen our community.

You can see the full list of upcoming events on our Events page.

Interested in hosting your own fundraising event? Contact us and we’ll help you get started.

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Volunteer

Volunteer

OHF is fueled by the passion and hard work of volunteers worldwide. When you give your time and talents, you help us create brighter tomorrows for people with hyperoxaluria and their families.

Ready to volunteer? Contact us at info@ohf.org.

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Social Media

Social Media

Help us make the world take notice of hyperoxaluria and oxalosis by spreading awareness on social media. This can be done in the following ways:

Update your email signature with our OHF logo. You can do this by downloading the logo here and saving it to your computer.

Then, use your email provider’s tool to insert this image into a standard signature.

Change your Facebook cover photo to feature OHF in 3 easy steps:

  1. Download the awareness cover photo here, and save it to your computer. Then upload it to your Facebook account and choose this image as your new cover photo.
  2. Update your Facebook status to let others know why you changed your photo. Use this opportunity to spread the word about hyperoxaluria and the important work of OHF.
  3. Ask your friends and family to change their profile pictures and help spread awareness, too. Together we can make the world take notice.

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Contact your representatives

Contact Your Representatives

Now more than ever, it is critical for people with hyperoxaluria and their families, friends, and colleagues to advocate for a cure. Share your voice and tell your elected officials how they can help fight hyperoxaluria.

Contact your member of Congress:

Find current and past legislation at congress.gov.

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Social Media

Patient Voice Panel

The Patient Voice Panel comprises patients, parents, family members, and caregivers, and is facilitated by members of the OHF staff. The role of the Patient Voice Panel is to support OHF’s mission by providing valuable input to OHF and industry partners to expand research, education, programs, and advocacy. The group helps OHF better understand the needs of patients and families while improving the culture within the hyperoxaluria community. The Patient Voice Panel works directly with OHF staff expanding outreach while raising awareness in local communities. If you would like to join the Patient Voice Panel, please contact Julie Bertarelli at julieb@ohf.org.

Read lessRead more

Donate

Did you know that 90% of every dollar donated to OHF is used to fund clinical research? We are passionate about funding the research that will one day deliver a cure, and we want the world to know how important that cure is for the thousands of people affected by the disease. When you donate to

Donate Read less Read more             

Fundraise

Our fundraisers help secure financial support for research, they raise awareness about hyperoxaluria… and they strengthen our community. 

You can see the full list of upcoming events on our Events page.

 

Interested in hosting your own fundraising event? Contact us and we’ll help you get started.

 

SEE EVENTS

Volunteer

OHF is fueled by the passion and hard work of volunteers worldwide. When you give your time and talents, you help us create brighter tomorrows for people with hyperoxaluria and their families.  

Ready to volunteer? Contact us at info@ohf.org.

Social Media

Help us make the world take notice of hyperoxaluria and oxalosis by spreading awareness on social media. This can be done in the following ways:

Update your email signature with our OHF logo. You can do this by downloading the logo here and saving it to your computer. Then, use your email provider’s tool to insert this image into a standard signature.

Change your Facebook cover photo to feature OHF in 3 easy steps:

  1.  Download the awareness cover photo here, and save it to your computer. Then upload it to your Facebook account and choose this image as your new cover photo
  2. Update your Facebook status to let others know why you changed your photo. Use this opportunity to spread the word about hyperoxaluria and the important work of OHF 
  3. Ask your friends and family to change their profile pictures and help spread awareness, too. Together we can make the world take notice.

Follow OHF on social media:

Read less Read more

Contact your representatives

Now more than ever, it is critical for people with hyperoxaluria and their families, friends, and colleagues to advocate for a cure. Share your voice and tell your elected officials how they can help fight hyperoxaluria.

Contact your member of Congress:

Find current and past legislation at congress.gov.

Read less Read more

Patient Voice Panel 

The Patient Voice Panel comprises patients, parents, family members, and caregivers, and is facilitated by members of the OHF staff. The role of the Patient Voice Panel is to support OHF’s mission by providing valuable input to OHF and industry partners to expand research, education, programs, and advocacy. The group helps OHF better understand the needs of patients and families while improving the culture within the hyperoxaluria community. The Patient Voice Panel works directly with OHF staff expanding outreach while raising awareness in local communities. If you would like to join the Patient Voice Panel, please contact Julie Bertarelli at julieb@ohf.org.

Read less Read more