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About us

Why We Exist 

 

Our Mission

The Oxalosis & Hyperoxaluria Foundation (OHF) is dedicated to finding treatments and a cure for all forms of hyperoxaluria.

Our Impact

We support thousands of healthcare professionals, patients, and their families, and we aim to share our knowledge so that everyone has accurate information about the advances in this disease.

We strive to use what we learn through our own research and outside sources to create forums for rich clinical and scientific discussion, covering the most current topics about the disease, so that we can provide better outcomes for patients around the globe.

By supporting research and spreading awareness about the disease among patients, medical professionals, government officials, the general public, and industry, we aspire to create brighter tomorrows for those impacted by primary hyperoxaluria, oxalosis, and related hyperoxaluria kidney stone conditions.

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How We Do It

We are a donor-funded, 501(c)(3) nonprofit, spending 90% of every dollar raised on research and programs for our community.

Executive Leadership

Our people are determined and innovative, working around the clock to end hyperoxaluria. The contributions from these exceptional individuals keep the Oxalosis & Hyperoxaluria Foundation moving forward.

Meet the Staff

Kim Hollander

Executive Director, New York, New York

Julie Bertarelli

Operations Coordinator, St. Louis, Missouri

Board of Directors

Our voluntary Board of Directors provides oversight and governance. Directors represent a variety of professional backgrounds with one thing in common: They all have been touched by hyperoxaluria and its complications.

Meet the Board Members

Brett Rosen

Chair

New York, New York

Brendan McGovern

President

New Hyde Park, New York

Tim Berra

Vice President

St. Louis, Missouri

Don Ashkenase

Treasurer

Great Neck, New York

Lisa Berra

Secretary

St. Louis, Missouri

William C. Tidmore, Jr. MD

Director

Valdosta, Georgia

Debra Wattenberg MD

VP of Science & Medical Affairs

New York, New York

Scientific Advisory Board and Scientific Advisory Council

The Scientific Advisory Board and Scientific Advisory Council are rotating committees of thought leaders who act as external advisors. They provide guidance and direction on our overall research strategy.

Meet the Scientific Advisory Board

W. Todd Lowther PhD

Chair

Wake Forest School of Medicine

Winston-Salem, North Carolina

Yaacov Frishberg MD

Vice Chair

Shaare Zedek Medical Center

Jerusalem, Israel

Michelle Baum MD

Boston Children’s Hospital

Boston, Massachusetts

Felix Knauf MD

Charité – University Medicine Berlin

Berlin, Germany

Carla Koehler, PhD

University of California, Los Angeles

Los Angeles, California

Lama Nazzal MD

New York University

New York, New York

Angel Pey, PhD

University of Granada

Granada, Spain

Eduardo Salido MD, PhD

Hospital Universitario Canaria, University La Laguna

Tenerife, Spain

David Sas DO

Mayo Clinic

Rochester, Minnesota

Kyle Wood MD

University of Alabama, Birmingham

Birmingham, Alabama

Scientific Advisory Council

The Scientific Advisory Council (SAC), comprising specialists and experts in related fields, provides independent advice as needed to the Scientific Advisory Board (SAB) on matters of concern in primary hyperoxaluria. The SAC may also review the foundation’s research portfolio and identify promising new areas of research.

Meet the Scientific Advisory Council

John Asplin MD

Litholink Corporation

Chicago, Illinois

Dean G. Assimos MD

University of Alabama

School of Medicine

Birmingham, Alabama

Bodo Beck MD

University of Cologne

Cologne, Germany

Ruth Belostotsky PhD

Shaare Zedek Medical Center

Jerusalem, Israel

Nicola Brunetti-Pierri MD

University of Naples

Naples, Italy

Benjamin K. Canales MD, MPH

University of Florida

Gainesville, Florida

Barbara Cellini PhD

University of Perugia

Perugia, Italy

Pierre Cochat MD

Hôpital Femme Mère Enfant

Université Lyon

Lyon, France

Scott Cramer PhD

University of Colorado

Aurora, Colorado

Christopher Danpure PhD

University College London

London, United Kingdom

Mario De Marchi MD

University of Torino

Torino, Italy

Monica Diaz-Gavilan PhD

University of Granada

Granada, Spain

Sonia Fargue PhD

University of Alabama

Birmingham, Alabama

Sander Garrelfs MD

Emma Children's Hospital

Amsterdam, Netherlands

Davis Goldfarb MD

NYU Langone Medical Center

New York, New York

Peter Harris PhD

Mayo Clinic

Rochester, MN

Hatim Hassan MD

University of Chicago

Chicago, Illinois

Jaap Groothof MD

Emma Children’s Hospital

Amsterdam, Netherlands

Marguerite Hatch PhD

University of Florida

Gainesville, Florida

John Herrin MD

Children’s Hospital Boston

Boston, Massachusetts

Ross Holmes PhD

University of Alabama

School of Medicine

Birmingham, Alabama

Markus J. Kemper MD

Universitäts-Klinikum Hamburg Eppendorf

Hamburg, Germany

Saeed Khan PhD

University of Florida

Gainesville, Florida

Robert Kleta MD

Royal Free Hospital

London, United Kingdom

John Knight PhD

The University of Alabama at Birmingham

Birmingham, AL

Hari K Koul MSc, PhD, FACN, FASN

LSU Health Shreveport

Shreveport, Louisiana

Amy Krambeck PhD

Mayo Clinic

Rochester, Minnesota

Kay Latta MD

Clementine-Kinderhospital

Frankfurt, Germany

John C. Lieske MD

Mayo Clinic

Rochester, MN

Naim Maalouf MD

University of Texas Southwestern Medical Center

Dallas, Texas

Robert B. Miller MD

Presbyterian Hospital

Albuquerque, New Mexico

Dawn Milliner MD

Mayo Clinic

Rochester, Minnesota

Tanecia Mitchell PhD

The University of Alabama at Birmingham

Birmingham, AL

Helen O’Connor MS, RD, CCRP

Mayo Clinic

Rochester, Minnesota

 Elisa Oppici PhD

University of Verona

Verona, Italy

Edward Purdue PhD

Mount Sinai School of Medicine

New York, New York

Michael Romero PhD

Mayo Clinic

Rochester, Minnesota

Jayanta Roy-Chowdhury MD

Albert Einstein College of Medicine

Bronx, New York

 

Namita Roy-Chowdhury PhD

Albert Einstein College of Medicine

Bronx, New York

Gill Rumsby PhD, FRC

University College London

London, United Kingdom

Eduardo Salido MD, PhD

University Laguna

Tenerife, Spain

Jose Sanchez-Ruiz

University of Granada

Granada, Spain

Gregory Tasian MD

The Children's Hospital of Philadelphia

Philadelphia, PA

Chandra Tucker PhD

University of Colorado

Aurora, Colorado

Carla Voltattorni PhD

University of Verona

Verona, Italy

Emma Walker PhD

University College London

London, England

Elaine Worcester MD

University of Chicago

Chicago, IL

Statements

The Oxalosis & Hyperoxaluria Foundation is a non-profit 501(c)(3) organization, and all donations are tax deductible.

ACCESS OUR FINANCIAL STATEMENTS