Studies
While we are happy to share information on current studies and trials that may be of interest to those affected by PH, none of the information in this section of the web site is the expressed interest of or a recommended course of action by the OHF Foundation. For more information about any of these studies, please contact the person or institution directly.

NIH-Funded, IRB Approved Study Needs PH-1 Patients

Drs. Craig Langman and Ellen Brooks in the Division of Kidney Diseases at Children's Memorial Hospital, Feinberg School of Medicine, Northwestern University, in Chicago, IL, USA, are conducting an NIH-funded, IRB-approved study in which they are comparing urine samples of patients with PH-1 and their normal siblings to look for similarities and differences in "biomarkers" in the urine samples.

They are looking for additional patients with PH-1 and/or siblings of patients to be participants in this study.

Participation is easy and involves a 24-hr urine collection. All the necessary materials for this study are provided and there is no cost for participation. Please call Dr. Ellen Brooks at (773) 327-5009, or email her at e-brooks3@northwestern.edu to learn more about the study.

 

A clinical trial evaluating a new treatment for PH is now open for enrollment

A Phase III trial evaluating the effectiveness and safety of Oxalobacter formigenes treatment in patients with Primary Hyperoxaluria (PH), is now actively recruiting patients in the USA and Europe... View PDF...    Read on web page...

 

International Registry for Primary Hyperoxaluria & Dent's Disease

Because of the rarity of patients, even physicians who specialize in kidney stone disease are likely to see only a few primary hyperoxaluria or Dent's disease patients over the course of a practicing lifetime.

In an effort to address this need for more comprehensive information, an International Registry was established at the Mayo Clinic Hyperoxaluria Center, with funding from the National Institute of Diabetes, Digestive, and Kidney Disorders (NIH). The Mayo Clinic Hyperoxaluria Center is sponsored by the Oxalosis and Hyperoxaluria Foundation. Learn more...

 

ClinicalTrials.gov

ClinicalTrials.gov is a registry of federally and privately supported clinical trials conducted in the United States and around the world. ClinicalTrials.gov gives you information about a trial's purpose, who may participate, locations, and phone numbers for more details. This information should be used in conjunction with advice from health care professionals. Read more...

BioMedSearch.com

This search engine contains all PubMed/MedLine publications, plus some additional journals and a database of theses and dissertations that are not available anywhere else for free. BioMedSearch it is more comprehensive than PubMed or any other free site. Read more...

Disclaimer: The OHF Foundation is not an accredited medical institution. It is a non-profit organization committed to raising funds for OHF research and various OHF programs. While we are happy to share information, none of the information in this section of the web site is the expressed interest of or a recommended course of action by the OHF Foundation. The information on this Web site is provided by the OHF Foundation with the understanding that the publisher, authors, and advisors are not rendering medical or professional services. Medicine is a rapidly changing area, and efforts have been made to provide information that is medically correct at the time of initial posting. The material provided should be used only as a general guide and not the ultimate source of information and should not be used to make personal or professional decisions. The OHF shall have neither liability not responsibility to any person or entity with respect to any loss or damage alleged to be caused directly or indirectly by the information presented in this journal/server.