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Share Your Story

The OHF "Share Your Story" is dedicated to people who have been affected by Oxalosis and PH. This is a place to read other's stories and write your own story about living with Oxalosis and PH and share your experiences with our web visitors.

Your encouraging words will be posted here to share with people from around the world. Please contact Kim Hollander at kimh@ohf.org to learn more.


Shared Stories

    A Mother's Point of View...
    Mason is a happy 6 year old boy who is full of life. He is kind to his friends and family and very protective of his little sister Rachel. He has a love for Star Wars, Pokemon and elephants. He swims like a fish... Read more »

    Living With PH for 35 Years...
    Every day I wake up is another day that my kidney disease hasn't beaten me! I have been living with Primary Hyperoxaluria for almost 35 years now. In 1976, at the age of 6, I was diagnosed by Dr. Lynwood Smith... Read more »

    Clare is her family's inspiration...
    In July 2006 when Clare Paulson was ten months old she wasn't feeling well and was running a high temperature. What appeared to be a normal childhood illness of strep throat, turned into a trip to the ER, after her temperature reached 106 degrees... Read more »

    Life is “excellent”...
    It was a Valentine’s Day present like no other. On Feb. 14, 1999, Jon Anglemyer received the call from Mayo Clinic telling him the wait was over — a donated kidney and liver were available... Read more »

    A Spirited Child's Strength Encourages his Family
    Reuben is described by his family as the happiest most active little 5 year old boy in the world. He loves all sports and there isn't enough time in the day for him to play with all of his favorite... Read more »

    It Will NOT Conquer Us
    The symptoms of Hyperoxaluria hit Larry Dimmick at the age of 37 years old. He remembers that day as vividly as if it was yesterday! Larry was working... Read more »

    Gunnar's and Alex's Tough Journey
    In February 2009, then 17 month-old Gunnar Schmitt was admitted to the hospital for dehydration following a short illness. Doctors thought an X-ray of his stomach was needed to make sure it wasn't distorted... Read more »
    View Gunnar's presentation here.

    Avid Golfer Lives Life to Its Fullest
    Meet 33 year old Dave Hensley. Dave and his wife Megan live in beautiful Holyoke, Colorado. While this city is small, Holyoke is the proud home of world-renowned Ballyneal Golf Club. Dave helped to build and develop this phenomenal..... Read more »

    A Farm Girl with Tremendous Courage
    Six year old Mary Wise has big,bright, brown eyes and a bubbly smile that makes you want to melt the minute she steps into the room. Little Mary is the 5th generation growing up on her family's cotton and soybean farm... Read more »

    An Incredible and Very Challenging Journey
    My name is Meghan Baskett,a nd I am 20 years old. I am from the Kansas City area. I am the daughter of Mary and Mel Baskett, the two most wonderful parents in the world... Read more »

    A Hero in Her Parents' Eyes
    A retired Navy Commander, Greg and his wife Laine faced many battles in their lives, but nothing could prepare them for the battle they would face when their daughter Leigh was just a year old. Leigh had the usual symptoms of a stomach virus, but what struck them as unusual was the intensity of their little girls cry for help... Read more »

    One Child's Struggle with Enteric Hyperoxaluira
    Just 12 weeks pregnant with their second child, Jason and Dori were told there was something wrong with their baby. A routine blood test revealed that either their baby was developing without a brain... Read more »

    Sheila, a strong and joyful woman
    If you met Sheila, (aka Lady-Bug), from Hendersonville, Tennessee, you would never know from her witty personality that she is suffering from the devastating effects of Primary Hyperoxaluria (PH)... Read more »

    Kyle – Pediatric Kidney Disease
    At six weeks old, Kyle developed a 101.5-degree fever. Routine medical tests, including blood work, a urine sample, and sonogram indicated that both of Kyle's kidneys were swollen and that the infant also had a urinary tract infection, which required him to be hospitalized... Read more »
     




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