About the OHF
The OHF was founded in 1989 thanks to the care, interest and actions of concerned parents and families, who were frustrated and confused and not sure where to turn after discovering that a loved one was diagnosed with a rare genetic disorder called Primary Hyperoxaluria (PH), which results in the never-ending formation of kidney stones caused by a defective enzyme in the liver.

The families were in search of hope, encouragement and information regarding PH. Together, the families pooled their time, talent and resources to find answers about this rare disease. They began to formalize a small group of families, physicians and researchers and eventually establish the OHF, a foundation which continues to be the leader in the world in finding better treatments and ultimately a cure for Oxalosis, PH and related stone disease.

Today, the OHF has grown from a parent support group composed of a handful of concerned hard working families into an international organization leading the fight to end Oxalosis, PH and related stone disease. There are now over 500 volunteers from all walks of life who give generously of their time and talents to implement the OHF programs.

The OHF has a Scientific Advisory Board, comprised of top experts from the finest universities and medical institutions from around the globe that help guide the OHF in funding millions of dollars in peer-approved research dedicated to Oxalosis, PH and related stone disease. The foundation also provides legislative support to the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) and the National Institutes of Health (NIH) to help better understand Oxalosis, PH and related stone disease.

The OHF is headquartered in New York, New York, and benefits from the guidance of an esteemed Board of Directors including parents, doctors, researchers and business people from around the country.